Wednesday, July 01, 2015

Sad times....

I'm not going to lie. Today is hard. Hours on the phone with insurance has brought me the same answer: "we'll let you know."  
Through tears, I explain again how my baby has already lost one eye to this cancer. I explain how in 6 weeks he developed 3 tumors, and now only 3 weeks later he has 3 more.  I explain how we are here, in New York, and I started this battle last week when I was in California.  I explain how, yes, legally, they may have time to make a decision but my baby may not have that time.  
One woman I spoke with was so very kind, and appropriately named Hope....she fought for us to get a supervisor, and came back almost in tears herself to tell me they would not speak with me.

I know how frustrating and infuriating it is...but I'm writing to say that I need help. I need back up and encouragement. My heart is hurting today for my baby boy and for my kids at home without me.

So. Here's what I am suggesting. Right now, keep praying for Elijah-that he would get exactly what he needs.  
Pray for us to endure *patiently* and faithfully.
Pray for the Spirit of God to be near and the Word of Christ to dwell in us richly.

And.  If you have a favorite verse, will you post it in the Facebook comments?
We believe that God's Word is alive and active. It is powerful for casting down strongholds. It is a strong tower, a refuge in times of trouble.

Help us to wait on the Lord well. I may not be able to read them all right away, but please know that every comment, every prayer, every thought on our family's behalf is cherished. We love all those who have partnered with us and we need you. Thank you.

I read this today and found it beautiful. Here's to producing MUCH fruit y'all:

"Mountain tops are for breadth of view and inspiration, but fruit grows in the valleys."--Ruth Graham


7 comments:

Amanda Rogers said...

Lyrics to All the Way My Savior Leads Me.
All the way my Savior leads me,
What have I to ask beside?
Can I doubt His tender mercy,
Who through life has been my Guide?
Heav’nly peace, divinest comfort,
Here by faith in Him to dwell!
For I know, whate’er befall me,
Jesus doeth all things well;
For I know, whate’er befall me,
Jesus doeth all things well.
All the way my Savior leads me,
Cheers each winding path I tread,
Gives me grace for every trial,
Feeds me with the living Bread.
Though my weary steps may falter
And my soul athirst may be,
Gushing from the Rock before me,
Lo! A spring of joy I see;
Gushing from the Rock before me,
Lo! A spring of joy I see.
All the way my Savior leads me,
Oh, the fullness of His love!
Perfect rest to me is promised
In my Father’s house above.
When my spirit, clothed immortal,
Wings its flight to realms of day
This my song through endless ages:
Jesus led me all the way;
This my song through endless ages:
Jesus led me all the way.

Amanda Rogers said...


All The Way My Savior Leads Me

Fanny Crosby, a gifted and prolific 19th century hymn writer, lost her sight at six weeks of age due to medical mistreatment. Fanny was surely well acquainted with the vulnerability characteristic of the visually impaired. This handicap, rather than discouraging or embittering her, instead caused her to ceaselessly rely on the Lord and to draw all her strength from Him.

The following hymn, composed after she had received an immediate answer to prayer, attests to the spirit of absolute dependence on God exhibited in the life of Fanny Crosby. One day she desperately needed five dollars and had no way to obtain it. As was her custom, Fanny began to pray about this pressing need. A few minutes later, a stranger came to her door with the exact amount. “I have no way of accounting for this,” she later said, “except to believe that God put it into the heart of this good man to bring the money. My first thought was that it is so wonderful the way the Lord leads me, I immediately wrote the poem and Dr. Lowry set it to music.”
All the way my Savior leads me; what have I to ask beside?
Can I doubt His tender mercy, who through life has been my Guide?
Heavenly peace, divinest comfort, here by faith in Him to dwell!
For I know whate'er befall me, Jesus doeth all things well.

All the way my Savior leads me, cheers every winding path I tread,
Gives me grace for every trial, feeds me with the living bread.
Though my weary steps may falter, and my soul athirst may be,
Gushing from the Rock before me, lo! a spring of joy I see.

From hymn.net
All the way my Savior leads me; Oh, the fullness of His love!
Perfect rest to me is promised in my Father's house above.
When my spirit, clothed immortal, wings its flight to realms of day,
This my song through endless ages: Jesus led me all the way.
While men may esteem and extol a Christian of great personal ability, strength, or works, God would rather that we be men of faith who love Him purely and depend on Him continually (Mark 12:28-30). Such was the case of the apostle Paul, whose His intimacy with God was the hidden root of all his life and labor (Phil. 4:13). He once remarked, “On behalf of myself I will not boast, except in my weaknesses,” for the Lord had revealed to him, “My power is perfected in weakness” (2 Cor. 12:5, 9). For a believer to trust in his own works and capability hinders him from fully experiencing God's grace, because he has not learned what it means to utterly rely on Him. One indicator of spiritual development is the ability to sincerely testify with the apostle Paul, “By the grace of God I am what I am; and His grace unto me did not turn out to be in vain… I labored…, yet not I but the grace of God which is with me” (1 Cor. 15:10).

Amanda Rogers said...

He WILL CONTINUE to lead you for He is a Good Shepherd, Faithful and True. We trust He will be your Peace, your Strength, your Comfort. “The heart knoweth its own sorrow and there are times when, like David, it is comforting to think that our tears are put in a bottle and not one of them forgotten by the one who leads us in paths of sorrow.”
― Hannah Hurnard, Hinds' Feet on High Places


2. Psalm 27:13-14: "I believe I will see the goodness of the Lord in the land of the living. Wait on the Lord; be strong, and may your heart be stout; wait on the Lord."

Anonymous said...


I consider that our present sufferings are not worth comparing with the glory that will be revealed in us.
Romans 8:18

Sending all my love and prayers to you and your family! 🙏

kimmomof4boys said...

Praying wit and for you and your baby

Romans 8:28-29King James Version (KJV)

28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.

29 For whom he did foreknow, he also did predestinate to be conformed to the image of his Son, that he might be the firstborn among many

Anonymous said...

Praying for Elijah and those who love him
For I know the plans I have for you, declares the Lord, plans for welfare and not for evil, to give you a future and a hope. Then you will call upon me and come and pray to me, and I will hear you. You will seek me and find me, when you seek me with all your heart. (‭Jeremiah‬ ‭29‬:‭11-13‬ ESV)

Brendayourfrienda said...

Heavenly Father, we know you are worthy of praise no matter the circumstances. You are Sovereign in this situation. But it's unbearable. It's really hard to even look at that precious boy with those Elijah blue eyes and ear to ear grin and wonder how can his needs be resisted? And we are only human and we are thinking this. We try to imagine your sadness even in the shadow of the thought that our prayers may go unanswered - but at least never unheard. Lord, you know how very hard it is for us to be on this earth. We are in desperate need of your affection and provision in real time. Please, please, I beg you Father, wrap your big, strong, healing arms around this mama so she can palpably discern your presence - while she waits for your perfect timing and answer. You have this whole situation in your perfect plan, and we just hope it's the same as ours - for perfect healing and retainment of his eyesight in the here and now. In the right now. But, we wait and hope and trust in You. Because you know best. May you ultimately receive all of the glory for this trial. Guard the hearts of the family members to realize your perfect, not missing a beat, care for each of them. Thank you Jesus for your perfect gift of yourself to all of us. We count on it now to get the Hester family through. Your grace is sufficient in this time of great need. Thank you, Jesus. WE love you.