Tuesday, April 26, 2016

A Giant Leap for today....

Elijah did great last night! He went to bed around 10pm, got up at 1:45am to nurse, and then slept until about 4:45am. We decided to go ahead and get up and start walking. :-)
We walked the streets of NY until we could head to the hospital.  
Elijah had been waking up at night, screaming and thrashing. He was pretty inconsolable.  I finally mentioned it to his nurse, so she had me meet with the anesthesiologist before Elijah's exam. We agreed to try a new "cocktail" and see if it helps him.
The last visit, they had told us to plan on doing two rounds of Intra-arterial chemotherapy.  When the doc came in he said that his tumor from last time was gone!!!! (Now, that means they can't measure it....there could still be live cells, but only time will tell.). Because of the great response, they gave us the option of doing another round of IAC, or doing nothing.  The doctor did explain that we've done this before-one round of IAC, then ended up having to laser most months until finally coming back to IAC.  He said that we don't usually get away with just one round....which is what we have done this time.  But when I asked him what he would do, he said, "I'd probably do nothing."
So with joy, Ben and I have decided on no treatment this time.  We will wait and see, knowing that there is a good chance there could be regrowth in the future.  And, if we get to this point again, we will be committing to at least two rounds of IAC.  But I just felt strongly that his little system could use a break, and since the tumor *seems* to have died, then I feel comfortable waiting and seeing what happens.  
We come back in 6 weeks!!!! I'm freaking out! This is awesome!
AND! He woke up from anesthesia so much better this time!!!  We will see if it helps with the night terrors, but I am so thankful!!!!! :-)

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